This month we are delighted to announce the official relaunch of our website, www.msbrainhealth.org. We are also sharing some inspiring examples of your efforts to promote MS Brain Health and improve the lives of people with MS in your country.
MS Brain Health website relaunch
We have redesigned our website to improve navigation and make it more accessible. We are still at the same address, www.msbrainhealth.org, but we have a new look and additional content!
New features include:
· Updated menu for easier navigation
· Dedicated ‘Resources’ section for our most popular downloads
· Option to make text larger and print every article
· Videos of MS experts, with full transcripts
Get inspired – your experiences of promoting brain health in MS
We asked you to share how you are helping to implement the recommendations of Brain health: time matters in multiple sclerosis. Here are some of your stories.
MS nurse and MS Brain Health champion in Australia, Jodi Haartsen, includes ‘brain health’ as a standard category in MS patient notes. This prompts her to ask every patient about relapses, medication adherence, exercise, smoking, diet, etc. These notes are shared with the patient’s primary care physician/general practitioner and are reviewed at the next appointment.
In the UK, an MS Brain Health local champion recently presented evidence from Brain health: a guide for people with multiple sclerosis in a meeting with local payers to explore how personal health budgets might be used most effectively. Crucially, this resource can help to empower people with MS to make shared decisions with their healthcare professionals.
One hospital in the south of England runs a biannual Patient Awareness Day for people with multiple sclerosis and their families. At their most recent event, presenters discussed the brain health perspective on MS and handed out copies of ‘Six ways to lead a brain-healthy lifestyle’.
Could you use our slide set, Brain health: a guide for people with multiple sclerosis, to present on brain health at your own event?
Please keep sending us stories about your local activities and events! If you would like to play a leading role in promoting MS Brain Health in your country, why not sign up to be a local champion?
As always, thank you for being part of the MS Brain Health initiative.
Gavin Giovannoni, MD
Professor of Neurology and Chair of the MS Brain Health Steering Committee
On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Giancarlo Comi, Kathleen Costello, Jeremy Hobart, Gisela Kobelt and Christoph Thalheim