MS Brain Health May 2018 Newsletter

Conference season gets into full swing shortly, which means MS Brain Health will be across the globe promoting timely MS care. Look out for our interactive MS Brain Health activities at the following events:

  • Consortium of Multiple Sclerosis Centers (CMSC) annual meeting
  • MS Summit educational event for people living with MS
  • European Academy of Neurology (EAN) congress
  • Australian & New Zealand Association of Neurologists (ANZAN) annual meeting

And good luck to everyone who is planning an event for World MS Day 2018 on 30 May!

Poster presentation and exhibition booth at CMSC 2018 annual meeting
Nashville, Tennessee

Poster presentation

Implementing a brain health-focused approach to multiple sclerosis care: global and local MS Brain Health initiatives (poster number MC04)
Thursday 31 May, 6.30–7.30 pm 

Jodi Haartsen, MS nurse and member of the MS Brain Health Steering Committee, will be presenting care standards related to a brain-healthy lifestyle, looking at current attitudes to quality improvement tools and describing the Australian MS Brain Health Community – the first national MS Brain Health group.  

Exhibition booth

Visit the MS Brain Health exhibition booth and pick up an MS Brain Health USB stick* containing our most popular resources. Just sign up at the MS Brain Health exhibition booth as an MS Brain Health champion to receive yours! (*available while stocks last) 

Printed copies of our most popular resources will also be available for you to take home.

MS Brain Health stand at MS Summit educational event
Nashville, Tennessee

A well-informed and proactive collaboration between a person living with MS and their healthcare team is an important part of managing the disease. The MS Summit event is an opportunity for people with MS to connect with other members of the MS community and learn from MS experts. 

Our team will be on the MS Brain Health stand to answer questions about brain health. If you are attending, please stop by and pick up your copy of Brain health: a guide for people with multiple sclerosis

Focused workshop and ePresentation at EAN 2018 congress
Lisbon, Portugal

Focused workshop

Brain Health in multiple sclerosis: a catalyst for a new approach to management
Saturday 16 June, 8.30–10.00 am

What do you think about using brain health-focused quality standards to benchmark MS care? Join us for this session where Professor Jeremy Hobart will present our consensus research on timely care, discuss our planned quality improvement tool for MS clinics and ask for your thoughts! Professor Gavin Giovannoni will put forward the case for treating-to-target to maximize brain health in MS, and Dr Gisela Kobelt will share recent data on the economic cost of MS in Europe.


International consensus on quality standards for multiple sclerosis care: results from a modified Delphi process
Sunday 17 June, 1.30–2.15 pm 

In this 5-minute presentation, Professor Jeremy Hobart will explain the rationale behind the MS Brain Health consensus research and present key results from the study, followed by Q&A.    

International quality standards to be presented at ANZAN 2018 annual meeting
Darwin, Australia 

Expert consensus on standards for multiple sclerosis care: results from a modified Delphi process
Wednesday 30 May, 5.30–6.30 pm

Professor Helmut Butzkueven will present findings from our international consensus research on timely MS care at the ANZAN conference this week. This is the first time these results will be presented in Australia. 

Drop by the poster session to give us your feedback on the standards and how they compare to your experiences of clinical practice.

Celebrating World MS Day on 30 May 

Don’t forget World MS Day on 30 May! This year the campaign is called #BringingUsCloser and the theme is research. Everyone can take part – visit the World MS Day website to find out more. Whatever you are doing to raise awareness or raise money, good luck! 

You can follow us on Twitter @MSBrainHealth to keep up with the latest news. Thank you for your continuing support! 

Gavin Giovannoni, MD
Professor of Neurology and Chair of the MS Brain Health Steering Committee

On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Jodi Haarsten, Jeremy Hobart, Gisela Kobelt, Christoph Thalheim, Tony Traboulsee, Tim Vollmer and Tjalf Ziemssen

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