Improving the quality of MS care
In 2016 we disseminated the recommendations from Brain health: time matters in multiple sclerosis to thousands of people. The focus now is to encourage implementation of key recommendations from the report – with the goal of reducing the wide variation in MS diagnostic and care services.
We hope to develop practical tools for:
- healthcare professionals, to provide a benchmark for standards in clinical practice
- people with MS, empowering them to participate more actively in decisions about their care.
To define standards for these tools, we have begun a consensus process involving neurologists, MS nurses, experts living with MS and allied healthcare professionals. We look forward to sharing the results of this exciting research later in the year.
New publication highlights the costs of MS across Europe
Evidence shows that the costs of MS soar as the disease progresses. A major European study involving almost 17,000 people with MS looked in more detail at how costs, employment and quality of life are affected by disease progression.
Researchers found that all were closely linked to disease severity, therefore slowing or preventing disease progression should be a priority in the treatment of people with MS.
Call for new MS Brain Health champions
We are delighted to have local healthcare professionals as champions in over 30 countries (orange). We’d also like to identify supporters in the areas shaded grey. Do you know a neurologist or MS nurse who supports the aims of the MS Brain Health initiative? Please suggest a new local champion using the button below, or get in touch with us at firstname.lastname@example.org to sign up.
Please follow us on Twitter (@MSBrainHealth) to keep up with the latest news. Thank you for your continued support!
Gavin Giovannoni, MD
Professor of Neurology and Chair of the MS Brain Health Steering Committee
On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Jodi Haarsten, Jeremy Hobart, Gisela Kobelt, Christoph Thalheim, Tony Traboulsee, Tim Vollmer and Tjalf Ziemssen