MS Brain Health July 2016 Newsletter

Dear supporters

People with multiple sclerosis (MS) spend just a small fraction of their time in consultations with healthcare professionals; most of the time, they manage their own care. Therefore, to give people with MS practical advice about looking after brain health, we have developed a number of new resources in collaboration with patient organizations.

Brain health: a guide for people with multiple sclerosis

This short guide aims to help people with MS understand how they can lead a brain-healthy lifestyle and request the highest possible standard of care from healthcare professionals. It explains how to put into practice the recommendations from the report Brain health: time matters in multiple sclerosis, and includes:

  • practical advice
  • reliable, evidence-based information about MS
  • clear images to help explain the science of MS.

Brain health: a guide for people with multiple sclerosis is also now available as a PowerPoint slide set.

  • View the presentation to learn more about brain health
  • Share it with MSers and your local MS societies
  • Present the slides at a local meeting

Continuing our series summarizing the latest MS research, we have two new articles to share. 

Making space for emotions – a continuing challenge for neurologists

Studies have shown that having the chance to express emotions during healthcare appointments helps people to cope with their condition and with life, and enhances collaboration with their healthcare professionals. But how often are people with MS given this chance in practice? Read the article here.

Stick with treatment – but ask about switching if it’s not working for you

A major international study has shown that consistently taking a disease-modifying therapy (DMT) is associated with slower long-term disability progression in people with relapsing MS. Furthermore, having a lower relapse rate is also associated with slower long-term disability progression. Read the article here.

Policy document cited by NHS report in the UK

Brain health: time matters in multiple sclerosis has been cited by a new UK National Health Service (NHS) report released at the end of June. 

The report, Transforming community neurology: what commissioners need to know, was launched by the Thames Valley Strategic Clinical Network. It aims to help people who plan and buy services in England to improve community neurology services for people with long-term neurological conditions. Read more here.

Please let us know how you are promoting brain health in your country. We'd like to feature your stories as examples of how to bring about change. As always, thank you for being part of the MS Brain Health initiative.

Gavin Giovannoni, MD

Professor of Neurology and Chair of the MS Brain Health Steering Committee

On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Giancarlo Comi, Kathleen Costello, Jeremy Hobart, Gisela Kobelt and Christoph Thalheim

Related content